In Speech therapy today Miss Nicole showed us this new device of technology that helps with communication... called the Dynavox. He LOVES LOVES LOVES this new toy of his! It has buttons on there that when you push them... it says out loud the word, such as MOM. It also has other buttons such as, EMERGENCY, FOOD, DAY AND MONTH... well he found the MOM button real quick and kept pushing it over and over like 10 times in a row and when she asked him why he kept pushing that button his response was: " So I can annoy her like she annoys me!" hahahahahaha.... LOVE YOU ALEX! He also kept pushing the EMERGENCY button which says "This is an emergency". When she asked him what was his emergency he replied " I AM HUNGRY... I NEED FOOD". hahahahahaha... he is a trip! He can't wait to play with this new device which we will get tomorrow... LORD HELP US ALL!!!
This afternoon we went to have the trach changed out. Poor thing he was so nervous and shaking when we went in there. In two seconds flat it was over and he was a trooper! When she occluded (my big doctor word for the day... basically means covered the hole), she had him count to five and we could here him. WOW... I wish you could have all seen his face! His eyes were soooo big and he said, I don't like the way I sound. He sounds somewhat raspy and kinda like he just sucked on helium balloon. He was soooo excited to be able to hear somewhat of words coming out of his mouth.... he was like a kid in a candy store! He had a big afternoon...when we got back from changing out the trach Lauren came up and gave him a pedicure!! He loved it! In fact he was hamming it up! check out the soaking of the feet, lol. That's how we roll up here in Brooks Rehab!! Thank you LAUREN!
He had some mash potatoes from KFC, some potato wedges and mickey d fries and ate almost all of it! As he calls it... REAL FOOD! He had a great day today and everyday he makes us laugh more and more.... today he told us that He is a child of God and that God loves him but that he loves God more but God doesn't argue that fact with him like we do! hahahahahahaha.... He always tells me and Randi that he loves us more after we tell him we love him but we say there is no way.... it turns out to be an argument every time! :0)
Anywho.... I will try to take better notes tomorrow so I can write alot more... took some melatonin with Alex so I can sleep good tonight and I am fading fast... sorry!
Will fill you all in on some cute stories from today.... TOMORROW!
THANK YOU GOD FOR CONTINUING TO PERFORM MIRACLES IN ALEX'S LIFE SO THAT HE CAN BE HERE WITH ME ANOTHER DAY!
PEACE~ LOVE~N~THUMBS UP!
Lisa
