STILL BASKING IN THE GLORY OF MY AWESOME GOD!

Tonight's blog won't be long... I just wanted to share a quick email and pass it on.... maybe it will brighten your day as it did mine.  Last night we didn't get much sleep... I think I slept 4 hours... Alex tossed and turned all night... he was hot, he was cold... you name it I was in and out of bed serving Mr. Alex so I am totally exhausted tonight and ready to hit the hay.  I am still in awe of Alex and his accomplishments thus far... it hasn't even been a whole year.... 8 mos... superman speed and it will only go uphill from here.  I did take him to the ENT yesterday.. forgot all about that as we had so much excitement with his walking lol.  He had some bleeding so I called Miss Amy at Dr. Beck's office... she is now part of our family as you can all imagine... we are her regulars, lol.  The trach he had in was fenestrated which means it had a hole in the trach tube and he had some granular tissue apparently that had been growing thru the hole and when we would change the inner cannula part it would basically scratch it and make it bleed.  Freaking me out a little... here are the pics below:

this is the trach Alex had in.... the new one does not have the hole in the tube for tissue to grow thru and cause infection or discomfort.

This is Alex's hole in his throat without the trach..... aaaaaaaaaaaaaaahhhh freaky freaky!!!

These are the pictures that Miss Amy took showing the granulation tissue growing thru the hole which was causing irritation and bleeding when we would change out the inner cannula which is another tube that fits inside the tube that you see lol..  It gets clogged with mucus and such kinda like our noses... he gets it in the inner cannula and therefore it has to be cleaned out every hour.  CAN'T WAIT TILL THIS COMES OUT. 

All in GOD'S TIME... RIGHT?  WE GOT THIS!

Here is the email I wanted to share... kinda puts things into perspective ... LOVE IT!

God's Cake... 

This is about the best thing I've ever read as an explanation. 

  Sometimes we wonder, 'What did I do to deserve this?' or 'Why did God have to do this to me?' Here is a wonderful explanation! A daughter is telling her Mother how everything is going wrong, she's failing algebra, her boyfriend broke up with her and her best friend is moving away. 
Meanwhile, her Mother is baking a cake and asks her daughter if she would like a snack, and the daughter says, 'Absolutely Mom, I love your cake.' 
'Here, have some cooking oil,' her Mother offers. 
'Yuck' says her daughter. 
'How about a couple raw eggs?' 'Gross, Mom!' 
'Would you like some flour then? Or maybe baking soda?' 
'Mom, those are all yucky!' 
To which the mother replies: 'Yes , all those things seem bad all by themselves. But when they are put together in the right way, they make a wonderfully delicious cake! ' 
God works the same way. Many times we wonder why He would let us go through such bad and difficult times. But God knows that when He puts these things all in His order, they always work for good! We just have to trust Him and, eventually, they will all make something wonderful! 
  God is crazy about you. He sends you flowers every spring and a sunrise every morning. Whenever you want to talk, He'll listen. He can live anywhere in the universe, and He chose your heart.

 

PEACE~LOVE~N~THUMBS UP!

LISA

WE HAVE THERAPY TOMORROW SO STAY TUNED FOR SOME GREAT UPDATES!!  :0)